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Resources for your practice
Living with GSDIa profoundly affects patients and caregivers due to the complexity of the disease and its management. The following resources and organizations may be useful as you help patients navigate the demands of GSDIa management.
Additional support and information about GSDIa*
*These organizations are an incomplete listing of rare disease advocacy groups and are
not controlled by, endorsed by, or affiliated with Ultragenyx Pharmaceutical Inc. The list is meant for
informational purposes only and is not intended to replace your healthcare professional’s medical advice.
Patients should ask a doctor or nurse any questions they may have about their disease or treatment plan. If
you would like to have your group added to the list, please contact
[email protected].
Abbreviation: GSDIa, glycogen storage
disease type Ia.